World Hospice Palliative Care Day takes place on 14 October 2023. This year the theme is Compassionate Communities: Together for Palliative Care.
The former Hospice Palliative Care Association, now the Association of Palliative Care Centres (APCC) is using the day to raise funds for fuel for their members, many of whom refer to themselves as hospices.
âAPCCâs members work alongside compassionate communities that multiply their ability to respond to the needs of the most vulnerable in our communities,â says Ewa Skowronska, CEO of the APCC. âAnyone given a life-threatening diagnosis should have access to the care and support required to navigate their journey â whether that be curative or end-of-life.âÂ
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In South Africa, most palliative care services are offered via APCC members. They are non-profit organisations and reliant on fund-raising for their sustainability.
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â90% of these services are provided in patientâs homes by home-based caring teams that provide holistic support to people diagnosed with a life-threatening disease and their loved ones,â says Leigh Meinert, Advocacy & Operations Manager of the APCC. âRising fuel costs are impacting on APCC members ability to travel to and from patientâs homes.â
âFuel is essential in our daily lives,â says Comfort Kagiso, the Fundraiser at Tshupe Hospice in Rustenburg. âIt is used for various applications, including transportation. When there is no money for petrol, the care team at Tshupe Hospice in Rustenburg set off on foot to the nearby townships such as Yizo -Yizo, Lefaragatlhe, Geelhout and Karlienpark which are up to 5kms away. Another consequence of not having money for fuel is that we are unable to transport patients that need it to the clinic or local hospital, which is 9kms away.âÂ
APCC members service both patients who have private healthcare support as well as those who do not. âIn the latter cases, the cost is borne by our member organization and funds for something such as fuel for transport or a generator are not easy to raise,â says Meinert.
âOur staff do not feel safe when they are travelling on foot,â says Kagiso, âbut they are committed to their patients, so they take these risks nonetheless.âÂ
Palliative care covers conditions such as HIV/AIDS, drug-resistant TB, chronic respiratory diseases, cardiovascular and neuromuscular diseases, MND and more. âBoth adults and children are catered for,â says Meinert, âand their loved ones are just as important, with psychosocial and spiritual support provided to all those impacted by the diagnosis as well as bereavement support. The home-based care teams fulfil a vital role in the palliative care process, and we wish to support them in the most practical way we can.â
To donate, please visit . All proceeds will be divided equally amongst APCCâs 91 members across the country.